Struggling tonight

You know as a mom, I have prided myself with kind of taking things in a stride for the most part with the kids…. premature? No problem I can handle it. Meningitis? Sure no problem. C. Diff? Gross, but I can take care of it…. surgeries? Scopes? Biopsies? Weird blood work? Hospital admission? Ok let’s roll with the punches. I always always know that God is completely in control and I am so thankful.

And you know weird stuff arises and we just keep on going, knowing that He is the author of our story. I often tell myself that I don’t need to stress, don’t need to worry, don’t need to focus on the particular incident at hand…. God gives me such peace through so much of the craziness. But tonight? I am anxious and overwhelmed. You know when Sam was diagnosed with his immune deficiency and the doctors told us that he had a high risk for autoimmune disorders and cancer? I literally was hysterical weeping but then God met me where I was at. Now having three kiddos that are immunocompromised, those risks are tripled. That is a lot to take for my momma ❤️. Today I was saddened to hear of another immune compromised person who has passed away from an infection made worse by being immunocompromised. I have read this persons story and followed their illness…. this was a “normal” physically fit and active person who just in November was competing in track meets and has now passed away. I can’t seem to wrap my brain around how quickly this illness sapped his strength and ability to fight off infection

As I loved on my babies today I couldn’t help but think about this young life that ended too soon, from something that you and I could fight off without even batting an eye. To think that my children could face something similar….. I just can’t even fathom😢

Sam the Man
Sweet Sophia, who doesn’t have a diagnosis but sometimes I wonder….
My sweet little Preston, who historically is the one who struggles so much when he gets sick
My baby Paisley Jean, the perfect grand finale to our family

These four babies are my greatest accomplishment. I am so very thankful that God chose me to be their momma…. but tonight I am overwhelmed with the “what if’s….” of the future .

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