Battling the devil

Gosh do you ever have a time where you feel as though at every turn there is a battle? That the devil is really trying to oppress you and steal your joy? I was starting to feel that way this week. My kids having the flu, my husband injuring his knee on the mountain this weekend and then a screw up with the kids infusion supplies. This morning I got up and was so overwhelmed with my to do list that I got burdened. I got angry. I got frustrated.

And then Preston and I headed for IVIG and as I was driving all 53 miles the Lord met me where I was at. Hr allowed His peace and strength to course through me and lift me up. In those everyday moments where life is just too hard and we can’t survive one more moment under the load of life, He meets us. Wouldn’t it be nice if we could surrender the struggle to Him before it gets to be too much? Wouldn’t it be nice if we walked every step of this life with the freeness of allowing ourselves to walk in the freedom that Jesus died to give us? Jesus died so that I don’t have to feel overwhelmed with the sickness in my house, he died so that I don’t have to worry about how the bills will get paid or what tomorrow holds. He died to give us an abundant joy filled life? And all we need to do is accept that freedom that He gives us. All we need to do is make the decision to continuously walk with Him to give it all to Him. That’s my goal this year to figure it out. To walk with Him instead of in this crazy world.

That being said, my sweet little P had his ivig today. He was such a trooper.

Be blessed. Call Him into every moment of this journey. HE wants to walk with you. He wants to carry all of your burdens.

Rest in Him❤ Walk in His love❤ Live in His presence❤

Be blessed

A New Beginning

Here we are in a new year. A year in which we have a clean slate. A year in which we can develop “new years resolutions” but in all actuality when you think about God we get the chance to start over EVERY TIME we mess up. God forgives us again and again. He never gives up on us. Never denies us His forgiveness. How amazing is that? When you think about it, He just will keep on loving us, no matter how many times we fall. No matter how many times we give up. He is still there patiently lovingly waiting for us to try again.

This year my hope and my prayer is that this is my best year yet, in my relationship with Him, that I can so completely fall in love with Him that no matter who I come in contact with, that they will sense Him in me. My prayer this year is that throughout every circumstance that the focus will always be on Him.

I so often times find myself just amazed at my life and amazed at God’s constant provision in seemingly shocking ways. This life, this journey of mothering four children, three with chronic illness, being a nurse, being a wife, and trying to raise a family in the way God has called me to can be overwhelming. Can be challenging, but in every way can be beautiful. This life, this journey, with all it’s twist and turns is a blessing. Start to finish, a blessing. And I am so very thankful that God has called me to be on it. I am so thankful that He has taken the wheel, and I am along for the beautiful ride.

First blog post (AGAIN)

Hi welcome to my blog. I have written before and love it. Life often gets busy and things fall by the way side and that is what has happened with my blogging….. That being said I here to start fresh. To document the incredible blessings God has given me. To document our triumphs and our struggles, but mostly to document how God is with us through all of life.

A little about our family…. I am an RN working in a pediatric acute care setting. Often people say things to me about how “It’s a good thing your a nurse, so you can handle your own kids.” And I have often pondered that statement. And come to the conclusion that this plan was orchestrated long before I had my kids. Long before all the medical that is our life. Long before my dream of having a healthy happy baby was changed. God gave me this burning desire to care for and comfort others and I am so thankful that he did.

My husband, a truly hard working man dedicated to doing his best in all of his efforts, A hard worker, a compassionate individual who strives for perfection in all of his projects. Currently he is a tower climber and climbs towers all over the east coast. It’s terrifying to me to even think about it. But just as I have had to trust my kids into God’s hands I also have to trust him with my husband.

Our oldest is 11 years old. We were over the moon excited when we found out we were expecting him. Our pregnance was filled with complication after complication. The physicians did not think that our sweet boy would be born alive. And so we decided to find out his gender. And when we did we needed him to have a name that signified what God had planned. And so he is named **********. Meaning SHELTER FROM THE STORM; GOD HAS HEARD. And he certainly has. But here he will be know as BIG BOY and he has an immune deficiency, a bleeding disorder, and eosinophilic colitis. But you you would never know it to look at him. He is thriving in middle school, loving playing trumpet And generally just a really great kid.

Next came our sweet first girl. This sweet girl was born via emergency C-section and was also premature. I will never forget the sound of her screams in the delivery room. The joy I felt and the amazing love as I heard and saw her for the first time still brings tears to my eyes. Her birth was so amazing. In the midst of my dad having a massive heart attack and my family being unable to be with us as we welcomed into the world, God just gave us this perfect sweet baby girl who was feisty and full of life. Sweet Pea is a sweet girl who loves all things girly, but also is so active, loves being outside, playing with her friends and more recently absolutely loves singing. She has this angelic voice that blesses me so much. I am so thrilled to hear her sing. Sweet Pea is also know as “the healthy one”. She is our child who is not immunocompromised, and she is happy to share that info with everyone.

Our third sweet miracle is a boy, he was lovingly called Baby Surprise while in utero. This handsome boy was also born prematurely and has had many many medical issues. He like his brother has been diagnosed with an immune deficiency, but he seems to be much sicker than Sam has been. He has had numerous numerous admissions, and when he does get sick it takes him months typically to recover. But this sweet little guy is the most loving snuggle bug you will ever meet. He has a knack for knowing when to give someone a hug, and tell them something that blesses their heart. He has a desire to comfort those who are hurting and he is always willing. He loves to sing, to play with legos, to snuggle and to read. We will call him BUG

And finally our sweet Sassy, we like to call her “our grand finale.” She is our baby. Also very feisty like her sister. But unlike Sweet Pea she also has been diagnosed with the immune deficiency. She isn’t quite as affected as her brothers, and although she tends to get sick a lot she typically bounces back quickly without complications. This little lady loves animals and baby dolls. She loves running and jumping and playing on her bouncy ball. Sassy is the perfect name for this sweet girl as she is Sassy as sassy can be.

This is our family, and we truly are so blessed. We hope you enjoy the journey with us. My hope in this blog is to encourage others who like me who have multiple young children, who work outside of the home and within, who have chronically ill children, who sometimes get overwhelmed in the process of this life, who know God is with them on this journey.